This communication is centred in presenting the impact that paediatric cancer can have on the brothers and sisters of a child patient.
Although the studies about this topic have increased in the last few years, they are still rare.
However, the investigations have revealed what the diagnosis and later effects of child cancer can entail for the siblings of the patient: identification and socialization problems, necessity of compensation, early adoption of great responsibilities, feelings of abandonment, blame, shame or sadness.
Gradual awareness of these facts must lead to the establishment of educative services for siblings and the development of confrontational strategies that correlate positively with a better adaptation to the disease by all the family. Therefore, starting with the identification of the main needs of brothers and sisters of a child suffering from cancer, this paper offers some guidelines and educative intervention strategies. The objective will be to reduce the negative effects, and to harness the positive interactions and the adjustment of siblings fighting cancer; this being one additional approach in the multidisciplinary work to support the holistic needs of children and young people with medical health problems.
References:
Barlow JH. y Ellard DR. (2004). Psycho-educational interventions for children with chronic disease, parents and siblings: an overview of the research evidence base. Child Care Health and Development, 30 (6), 637-645.
Barlow JH. y Ellard DR. (2006). The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base. Child Care Health and Development, 32 (1), 19-31.
Guite J., Lobato D., Kao B. y Plante, W. (2004). Discordance between sibling and parent reports of the impact of chronic illness and disability on siblings. Childrens Health Care, 33 (1), 77-92.
Houtzager BA., Grootenhuis MA., Hoekstra-Weebers JEHM, y col. (2005). One month after diagnosis: quality of life, coping and previous functioning in siblings of children with cancer. Child Care Health and Development, 31 (1), 75-87.
Lahteenmaki PM., Sjoblom J., Korhonen T., y col. (2004). The siblings of childhood cancer patients need early support: a follow up study over the first year. Archives of Disease in Childhood, 89 (11), 1008-1013.
Lobato DJ. y Kao BT. (2005). Brief report: Family-based group intervention for young siblings of children with chronic illness and developmental disability. Journal of Pediatric Psychology, 30 (8), 678-682.
Naylor, Angie. (2004). Invisible Children: The Need for Support Groups for Siblings of Disabled Children. British Journal of Special Education. 31(4), 199-206.
Odièvre, M. (2003). Les frères et soeurs, partenaires oubliés de l’information. En: Dommergues, JP., Leverger, G. y Rapoport, D. Droit de savoir, savoir dire. Ed. Belin, Paris.
Packman W., Greenhalgh J., Chesterman B., Shaffer T., Fine J., VanZutphen K., Golan R.y Amylon MD. (2005). Siblings of pediatric cancer patients: The quantitative and qualitative nature of quality of life. Journal of Psychosocial Oncology, 23 (1), 87-108.
Van Dongen-Melman, JEWM., De Groot, A., Hählen, K. y Verhulst, FC. (1995). Siblings of childhood cancer survivors: how does this “forgotten” group of children adjust after cessation of successful cancer treatment? European Journal of Cancer, 31 (13-14), 2277-2283.
| Attachment | Size |
|---|---|
| Impact of illness on siblings.ppt | 132 KB |
